This week I am heading off to Arizona to photograph Wylder Nation! Wylder is the most amazing little man, who at 7 months was diagnosed with Neimann-Pick Disease Type A . Wylder has shown us time and time again, after numerous surgeries and dealing with this disease on a day to day basis, what an incredible fighter he is! I am so lucky and honored to be a part of this amazing event to help change Wylder's life and the lifes of many more!
It is said best here...
Life can be a revolving door – People coming and going, many of which we never really get a chance to know. However, there are also people that come into our lives andleave permanent footprints on our heart. Despite being diagnosed with a rare metabolic disorder called Niemann Pick Type A at7 months old, Wylder James has managed to foreverenrich the lives of those he has touched. They said he would never walk and yet he has grabbed our hands and taken us on ajourney that defines courage. He has taken forward steps while showing us how tohave perspective along the way. They said he would never talk and yet he has spoken to everyone he has come intocontact with, teaching us lessons about true love and perseverance along the way. Hisvoice has been heard. With uncertainty facing him everyday, he manages toinspire hope, belief and to never say never. On March 19 evening dedicated to him and the human spirit. March 19th, 2011 we hope to do for him what he has done for us.
You can read more on Wylder's Blog: www.wylderjames.com
Or find out more about Wylder Nation on Facebook: WylderNation
Cannot wait to see this little man and give him a big sqeeze!!! Photos and details will follow next week :) XO